Just about 2 years ago I was diagnosed with a lupus like disorder. They have been searching to find what it is exactly. I have almost all the symptoms of lupus, and a positive ANA but my lupus test was negative. We finally think we may have found out what it is. Behcets. Not a great disease. I have been going to the dr about once a month and getting rounds of tests done each time. I keep getting new symptoms and old ones keep getting worse. When I was pregnant with Kiara I started getting these muscle spasms or twitches. They have continued to get worse, becoming ridiculous if Im stressed or extremely tired. They have actually gotten to the point where they are no longer twitches but more like seizures, I have to have a consult with a neurologist to find out exactly what they are. Im also getting a nerve conduction test done because my arms keep going numb. They were thinking it was carpel tunnel but its goig up my arms, so im getting that done July 16th. I also have been having "panic attacks" for the last 9 months or so. My heart starts pounding and I get butterflies adn my adrenaline pumps. But the antianxiety meds they gave me never helped and it just didnt make sense because they would come out of no where with no reason, like I would be cooking dinner or changing the babies diaper. I was in my dr about 2months ago when I got one of those attacks. My heart rate was 155!! Really high! My dr did some natural remedies to see if he could get it down, if not he was going to send me tot he ER. Well he got it down, but wanted to see if there was a reason for it. So I got a U/S of my heart done in the beginning of May. They kept telling me they didnt have my results back and I was getting frusterated. 6 weeks went by and then my dr's office called saying they wante dto set up an appt to get my results read and refill all my meds since he doesnt do refills. I really didnt think anything would be wrong. Well I was wrong! I have 2 leaks in my heart. One in the right ventricle and one in the mitro valve. Apparently its not suppposed to be dangerous but thats what is causing the high heart rate, my heart rate doesnt go under 110 anymore. They have started me on a beta blocker. I'm also on a muscle relaxant. And an inhaler for my asthma that has gotten out of control, and now Im getting tested for seizures, my arhtritis continues to progress. Im in a lot of pain and I hate it. Im always tired, and sleep soo much! I hate it, its not fair. Its just one thing after another. I just want all the positive results to stop, dont I have enough to deal with? An autoimmune disorder, that has caused arthritis, chronic UTI's, chronic fatigue, asthma, migranes, heart problems, and now probably neuro problems. im too young for all of this. I just dont understand how all this happened????? Its getting really hard to deal. I dunno . . . . I just needed to vent. Thanks for listening to me.
Oh wow, mama. I'm sorry you're dealing with all that.
I don't really know what to say except I'm sorry you're going through all this. That is a lot to deal with. ((Hugs))
wow, that would be a lot for anyone to deal with. I am sorry you keep having all of these health problems. Hang in there. Hopefully the doctors will figure out whats wrong and how to fix it soon.
O wow. Im very sorry about all the health issues you are going through..I wish I had some advice, but I just don't know what to say.. I hope that you are able to get some releif from the symptoms soon.
That sounds really stressful. I wish you health!
Oh hun, that sounds so difficult to deal with! I'm so sorry that things seem to be falling apart for you.. I hope they can find some answers and beter yet some treatment options that would make your life more comfortable.
If you get a chance, try and call me.. I really miss talking with you hun!!
thanks guys. i appriciate the support. Im just sooo scared, my health just keeps falling apart adn i have young kids which scares me even more. what if something happens to me? ya know??? i feel bad bc i always am sick and never feel good. one time ian asked to go to the park and i told him when dad got home bc i wasnt feeling good and i couldnt take all 3 by myself. he said " i HATE you being sick mommy!!! You NEVER do anything anymore, i hate it and its not fair!!" i cried for about 2 hours, bc it was true and that hurt! my own kids see it. i hate it! its not fair to them. i just found out i probably dont qualify for disability either. i havent worked enough. thats not fair. ive been lucky enough to be able to stay home with my kids, and now we really need the extra income but my health doesnt allow it, so disablity was something we really need! but i have to have at least like 8 credits or something and its every certain amount you earn in a year is worth so many credits. i only have like 3 or something and i think you need 16-20. it sucks!
oh and amanda, i miss ya too hun! i really could have used your advice and listening ear thru all of this, but they turned our phone off. i hve a prepaid cell for bills and stuff but we dont ever have many mins on it so im not able to use it to talk, so ill try to get to a phone soon ok so we can talk! it sounds like we need each other!