Early intervention is comming out today. Has anyone used them before? What was your experience? Kayla is pretty delayed, even for adjusted age, so I was wondering if they really help or not.
we havent had them come out yet, lex's dr has tossed around the idea, but nothing yet, im a little nervous about them. anyways with that being said ive heard good and bad about them.
let us know what they say!
my friends son was a preemie and had early intervention come twice a week(we lived together), they were great and really helped with his language skills.
The thing I am most worried about is that she is so small, even for adjusted age. For those of you who don't know Kayla's adjusted age is 13 weeks behind what her actual birthday is. She was due to be born 13 weeks later, so you subtract 13 weeks from her actual age. Thats how it is with all preemies, you take the number of weeks that they were early and subtract that from their actual age, and that gives you an adjusted age. Kayla's adjusted age is 4 mos 1 week, and she's still small for 4 mos. She's only 11 pounds, and I think most 4 month olds are siginificantly bigger than that.
They did their assesment, and they said she is about on a 2 month level, except for social development which she is on about a 4 month level (right on target!!), so she's gonna go to the center thing and have thearpy twice a week, if they have room for her.
Also, I found out that Childrens Hospital diagnosed her with Craniosynostosis!!!!!! They didn't even bother to let her mom know!!!!! I am SUPER pissed about this, and someone (hopefully I can get through to the hospital director) is gonna get an earful from an angry mama. This isn't like one of their normal screw-ups, this is my baby's BRAIN that they're fucking around with. You only get ONE your whole life. I am so incredibly pissed about this. I can't even keep writing about it, I am so fed up with Childrens.
My husband had craniostenosis as a baby. He had the surgery when he was 10 months old, which is rather late to have it. I have always been under the impression that it doesn't really effect the brain at all. You can go on to be totaly normal and healthy, but have a very oddly shaped head. His parents chose to do the surgery because they wanted him to not have the social stigma attached with the head malformation.
If the bones of the skull don't grow with the brain, that can cause brain damage and sometimes death. Like when someone has a head injury, and their brain swells, same kind of thing. She's perfectly normal for RIGHT now, but if it isn't treated it could cause brain damage, and thats not something I am willing to risk.
Early Intervention will come out to the homes of "at risk" babies, preemies, mentally retarded babies, and some birth defect babies, or geneticly abnormal babies, and do an assessment of the babies so that if the babies start lagging behind they can catch it early, and intervene with thearpy and stuff that the baby may need. This is only in the US (can't remember where you are), but canada and other countries probably have similar programs. Oh, it's also provided at no cost to the family, the school district picks up the tab for it which is way cool!
we havent had them come out yet, lex's dr has tossed around the idea, but nothing yet, im a little nervous about them. anyways with that being said ive heard good and bad about them.
let us know what they say!
my friends son was a preemie and had early intervention come twice a week(we lived together), they were great and really helped with his language skills.
The thing I am most worried about is that she is so small, even for adjusted age. For those of you who don't know Kayla's adjusted age is 13 weeks behind what her actual birthday is. She was due to be born 13 weeks later, so you subtract 13 weeks from her actual age. Thats how it is with all preemies, you take the number of weeks that they were early and subtract that from their actual age, and that gives you an adjusted age. Kayla's adjusted age is 4 mos 1 week, and she's still small for 4 mos. She's only 11 pounds, and I think most 4 month olds are siginificantly bigger than that.
They did their assesment, and they said she is about on a 2 month level, except for social development which she is on about a 4 month level (right on target!!), so she's gonna go to the center thing and have thearpy twice a week, if they have room for her.
Also, I found out that Childrens Hospital diagnosed her with Craniosynostosis!!!!!! They didn't even bother to let her mom know!!!!! I am SUPER pissed about this, and someone (hopefully I can get through to the hospital director) is gonna get an earful from an angry mama. This isn't like one of their normal screw-ups, this is my baby's BRAIN that they're fucking around with. You only get ONE your whole life. I am so incredibly pissed about this. I can't even keep writing about it, I am so fed up with Childrens.
My husband had craniostenosis as a baby. He had the surgery when he was 10 months old, which is rather late to have it. I have always been under the impression that it doesn't really effect the brain at all. You can go on to be totaly normal and healthy, but have a very oddly shaped head. His parents chose to do the surgery because they wanted him to not have the social stigma attached with the head malformation.
If the bones of the skull don't grow with the brain, that can cause brain damage and sometimes death. Like when someone has a head injury, and their brain swells, same kind of thing. She's perfectly normal for RIGHT now, but if it isn't treated it could cause brain damage, and thats not something I am willing to risk.
Could you tell me what early intervention is, please?
Early Intervention will come out to the homes of "at risk" babies, preemies, mentally retarded babies, and some birth defect babies, or geneticly abnormal babies, and do an assessment of the babies so that if the babies start lagging behind they can catch it early, and intervene with thearpy and stuff that the baby may need. This is only in the US (can't remember where you are), but canada and other countries probably have similar programs. Oh, it's also provided at no cost to the family, the school district picks up the tab for it which is way cool!
Will they come visit Kayla regularly?
I'll take her to a center twice a week for thearpy, and I guess they'll come out from time to time to re-evulate her.
They are going to come work with my son at his daycare center. Good luck with everything